Cancer is one of the most
debilitating and dire diseases. Unfortunately, many of us know someone who has
had cancer. We know the intense struggle it is for not only the innocent
victims of the disease, but also their family and friends. Even with advances
in medicine and technology, there is no easy path to curing cancer, and there
are many hurdles patients and families must overcome in order to live a life
cancer free. Some of these hurdles include just the daily struggle to do the
things that they enjoy, trying to maintain a sense of normalcy, while dealing
with the severe side effects of chemotherapy and other poisons in their body. But
other hurdles include things that don’t immediately come to mind when you think
of cancer, such as medical bills, social life, education, etc. Many of these
problems are exacerbated when the patient is a child and it is often
overwhelming or impossible for families to deal with these on their own.
Thankfully, there are organizations that fulfill that role, providing services
and support to cancer patients and their families. One of these organizations,
which I’m proud to support and pitch to the class, is Chai Lifeline.
Chai Lifeline is a charity with the
mission of restoring the joy and bliss to children who
have been diagnosed with life-threatening and life-long diseases and their
families. They provide support services and
counseling to patients, families, and communities. One of their main programs
is Camp Simcha. Camp Simcha is a medically supervised four-week sleepaway camp
for kids with cancer and other blood-related illnesses. They also have a
program called Camp Simcha Special, which is the same except that it is for
kids with multiple chronic medical conditions and disabilities, the first of
its kind. Children at these camps learn valuable skills, make lifelong friends,
gain confidence, and leave better equipped to deal with the tremendous
adversity that they face.
Chai
Lifeline also provides many other concrete services that go beyond the
intangibles that are so necessary. Volunteers from Chai Lifeline go to
hospitals and children’s homes to cheer up patients and even sleep at the
hospital, so that parents can tend to other things like their families and
other needs. Chai Lifeline also provides transportation so that patients can go
to their appointments. Chai Lifeline also provides delicious and nutritious
meals for patients who might find the hospital food unappealing, and for
parents who may not leave their child’s bedside even if it means not eating.
They also work with hospitals to create kosher sections in their cafeterias, so
that observant families can get snacks and meals without leaving the hospital.
They also provide insurance advocacy and work with parents to make sure all
their child’s needs are being fulfilled. Another program they have is big
brother/big sister mentoring program, which can be very beneficial to the
children. They also have retreats for the whole family so that parents and
siblings can get counseling and enjoy themselves. The last program I want to
list, although there are so many more great things that Chai Lifeline does, is
their educational support. Education is essential for many aspects of a child’s
life, but have a serious disease, such as cancer, can make it difficult to go
to school, keep up with peers, etc. Chai Lifeline provides afterschool
activities for patients, tablet loans so that students can send work to their
teachers, skype with their friends, and read textbooks online, and tutors, so
that kids don’t fall behind. Cancer is so disruptive to many aspects of a
child’s life. Chai Lifeline’s vast and wholistic approach allows children and
families to maintain a sense of normalcy and helps minimize the disruptive
nature of cancer.
Chai
Lifeline is a great organization, but unfortunately, I only know of it because
of the services they provided to my family. The year was 2001, I was less than
a year old, my mother had just survived one of the worst terrorist attacks to
happen in America, being in the World Trade Center when the planes hit on 9/11.
The world was chaotic and busy, with my mother having to raise three young
children, including me, a newborn, while working to rebuild Morgan Stanley
following 9/11. It didn’t seem like life could get any harder, but
unfortunately, my oldest brother was diagnosed with leukemia at the age of three.
My mom realized that she couldn’t work and take care of sick child and a
newborn, and a 3-year-old at once, so she quit her job. My dad at this time was
working in research, which was time consuming and didn’t pay much. It was a
hard time, but thankfully they had the support of Chai Lifeline. My brother
attended Camp Simcha and was happy and had a mentor that brought joy to his
life. They also provided big brothers/big sisters to my brother and me. Chai
Lifeline was there for our family.
Cancer is a
terrible, malicious disease, especially for children who are innocent and have
their whole lives ahead of them. Chai Lifeline’s complete and comprehensive
approach allows children and teens with cancer and their families to maintain
happiness, hope, and a sense of normalcy in life, that is so important to their
growth. I am proud to support Chai Lifeline and I hope you can too.
Andrew Werner
This charity has some similarities to the Innocence Project, namely the providing of the necessary resources or funds to acquire those resources to kids with cancer. It seems like Chai Lifeline puts their resources into many different aspects of assisting children with cancer, and based on your anecdote it seems as if Chai Lifeline does an effective job at covering all these bases. One has to wonder how long Chai Lifeline stays connected with cancer victims and their families, and how deep their support of those families runs. Regardless, your charity pitch gave me the impression of an organization that has plenty of experience working with families of children with cancer, and know how to tackle the issues those families face from all sides. I am excited to see what new perspectives you will bring to the class when you discuss this charity tomorrow.
ReplyDeleteThank you for your comment. To answer your question, they do keep in touch and hold events where they invite people who have experienced and overcome cancer. I'm actually surprised by your comparison to the Innocence Project. I didn't think it about that way. I expected people to compare it to Camp Ahwaga, which is similar to Camp Simcha Special.
Delete-Andrew Werner
DeleteI think that it is important to remember that patients are people too. Having cancer can take away the normalcy and routine of a child's life. While we cannot cure these patients, we can try to make their lives a little bit more normal, and certainly much more colorful. I think that philanthropy is amazing. There is money needed pretty much everywhere. However, what I think is even more powerful, are people and human relationships. The entire world revolves around relationships and community. When people come together, that is the most powerful. I really like Chai Lifeline because they take their money, and they invest it in people. Through sending volunteers to the hospitals to interact with patients, Chai Lifeline emphasizes the power of human compassion. This is something that I didn't realize money could buy.
ReplyDeleteThank you for your comment. Yes, compassion is really important and it should be the basis behind every philanthropic decision. When people come together as communities and work together effectively, they can accomplish anything. I have to disagree slightly with your last sentence. I don't think money can buy compassion, but money can be a great tool if used for compassionate ends. Patients are often treated like machines with broken parts. We need organizations like Chai Lifeline because they remind patients that they are still as human as the rest of us and restore hope to children, which is so vital to their prognosis.
Delete-Andrew Werner
Thank you for sharing something so personal with us. Reading about how Chai Lifeline impacted you and your family firsthand, and just the fact that it is still important to you now, definitely validates its credibility and reliability in terms of long term success. I think that Chai Lifeline has a very unique and honorable mission that I really admire - like Lucia mentioned, patients are people too. I think a lot of people don't know how to react to someone who has been diagnosed with a life-threatening and life-long disease, and I think that it's important for organizations like Chai Lifeline to provide a sense of normalcy. Along with that, its efforts to help parents/family members adjust is also crucial because patients are not the only ones affected by this; loved ones also struggle to cope and when I read about how volunteers from the organization stay with the children when the parents need to go to work or have a break, bring food to parents who don't want to leave their children's bedsides, and go on retreats with the families, I was really amazed by how much they do to help the family navigate something that is really terrifying. Speaking from personal experience, watching a loved one suffer through cancer is so difficult without the additional concerns about finances or who's staying overnight/keeping the person company, and I'm really happy that there are organizations out there that focus on these issues. Thank you for sharing.
ReplyDeleteMaggie
Maggie,
DeleteIt is unfortunate that you and so many others can also relate to my situation, but it also shows the importance of organizations like Chai Lifeline being there to provide the things that families don't have the time, money, or energy to do. I thought what you wrote very eloquently described the impact that organizations like Chai Lifeline have on patients and their families and I'm glad you were able to learn something from my charity pitch. I hope your loved one is okay. Thank you for your comment.
-Andrew
Andrew,
ReplyDeleteThank you for sharing your experience with Chai Lifeline, I really appreciate your ability to open up about something so personal. Your description puts into perspective the variety of struggles that children with cancer experience but are not commonly spoken about, like parents of sick children needing to sleep in hospitals frequently. Their program to help parents in this position is unique and admirable. I am curious about the scope of this organization because they are able to facilitate many different programs; is Chai Lifeline a regional, national, or international organization? I’m also curious if their programs are mostly carried out by paid staff or a large base of volunteers. Regardless of if the organization is big or small, it’s clear that the work Chai Lifeline is doing is incredibly valuable and clearly makes a lasting positive impact on the lives of the people it helps. Thank you for pitching such a great charity!
Sophia,
DeleteThank you for your comment. It was hard to open up about something so personal, but I thought it was important to tell my brother's and my family's story and raise awareness about the needs of children and teens with cancer and chronic conditions. To answer your questions Chai Lifeline has been expanding into new countries including Canada and the U.K. and they have over 7,000 volunteers. They have an audited financial report on their website. The amount they spend on salaries is about 9.3 million dollars, but administration is only 787,456 dollars. A lot of that money goes to paying the doctors and nurses at the summer camps, and probably towards catering and other services at the events they hold. This seems like a lot of money for salaries, but you have to remember that a lot of services they provide involve people and activities, rather than physical things. I'm glad you were able to learn from my charity pitch.
-Andrew
Andrew,
ReplyDeleteI'd like to start off by saying congratulations for winning the vote for the donation to Chai Lifeline. I'm glad you were able to open up to the class about the deeply personal connection you have with the organization and how it impacted your family. My favorite aspect of Chai Lifeline is thee 4-week sleep-away camp for sick children, Camp Simcha. I think it is so important for children with cancer and other debilitating illnesses to have access to these kind of quality-of-life improving opportunities. Not only do they provide support in the form of physical things, I love how they provide emotional support for the patients as well, that is so important. The credibility of your argument was supported very well by your own side of the story and how Chai Lifeline had an impact on your families life. The connections they form with patients will be lifelong and I'm very glad Chai Lifeline received our donation. Thank you again for sharing your deeply personal story.